“We need to be at the table”: Collaboration with lived experts

Abstract

Background

The recognition of lived experience (LE) as an asset has led to increased involvement of individuals most affected by social or medical conditions in research.

Objectives

This paper presents an example of a LE advisory group that co-conceptualized and executed a knowledge mobilization project on aging and homelessness within three Canadian cities (Vancouver, Calgary, and Montreal).

Methods

We established the advisory group, determined the group’s priorities and objectives, and fostered community engagement through webinars and in-person events.

Lessons Learned

We learned the importance of digital support to enable inclusion of advisors with experiences of homelessness, providing honoraria to for advisors’ time and contributions, scheduling meetings on the same day and time each month, and dedicating meeting time for advisors’ personal updates and experiences.  

Conclusion

This model can be replicated by other research teams studying homelessness, aging, or similar marginalized groups, enhancing the impact of research and knowledge mobilization efforts.

Keywords:

Lived experiences, Community-Based Participatory Research, Homeless Persons, Health Services for the Aged, Aging, Community health partnerships, Process issues